Organisation

Autism Independent UK

Address

199 – 203 Blandford Avenue
Kettering
Northants
NN16 9AT

Contact Name

Mr. K Lovett

Telephone

01536 523274

Fax

01536 523274

Web Site

www.autismuk.com

E-mail

autism@autismuk.com

Information

Lobbies for increased autism awareness to enhance the quality of life of the individual and families/carers. Organises training and education programmes for parents and professionals. Operates a Help-line for parents and professionals.

Organisation

Carers Christian Fellowship

Contact Name

Mrs. S Jones

Telephone

01793 887068

Web Site

www.carerschristianfellowship.org.uk

E-mail

sjones.ccf@ntlworld.com

Information

National Support Charity for Christian Carers. Mainly postal, through a quarterly newsletter. Can link carers in similar circumstances, both nationally and locally together by phone, letter or meeting. Offer local groups and also organise fellowship days around the country. A listening ear by contacting the above number.

An annual subscription of £10.00 or £5.00 for waged or un waged households respectively.

Organisation

Carers UK

Address

Ruth Pitter House
20-25 Glasshouse Yard
London
EC1A 4JT

Telephone

0808 808 7777 Carersline
020 7490 8818 Main Office

Fax

020 7490 8824

Web Site

www.carersuk.org

E-mail

info@carersuk.org

Information

Office hours are 9a.m. – 5p.m. Helps Carers to speak with a stronger voice. Provides information and advice on all aspects of caring to both carers and professionals. Runs a training service for professionals. UK-wide network of offices, branches and individuals offers support to Carers and provides vital feedback on local practices and policies across the UK. Campaigns at all levels of government and with service providers to ensure that action is taken to support Carers.

Carersline is open between 10a.m. until 12noon and 2p.m. until 4p.m. free advice line for Carers.

Organisation

Childline

Address

45 Folgate Street
London
E1 6GL

Telephone

020 7650 3200 admin
0800 400222 Minicom
0800 1111 - 24 hour
0800 1111 - Helpline number 24-hour, 7days a week
0800 884444 - Special Service Helpline – ‘The Line’
(for children living away from home)

Fax

020 7239 1001

Web Site

www.childline.org.uk

E-mail

reception@childline.org.uk  

Information

Childline is the UK’s free helpline for children and young people in trouble or danger. It provides a confidential telephone counselling service for any child with any problems, 24 hours a day, every day. It comforts, advises and protects. Where a child is in danger, Childline works with other helping agencies to ensure the child’s protection.

Childline also brings to public attention issues affecting children’s welfare and rights.

Organisation

Contact a Family

Address

209-211 City Road
London
EC1V 1JN

Telephone

020 7608 8700
0808 808 3555 Helpline
020 7608 8702 Minicom.

Fax

020 7608 8701

Web Site

www.cafamily.org.uk

E-mail

info@cafamily.org.uk

Information

Offers support and information by phone to professionals, Carers and Parents of children and young people up to the age of 19, enquiring about any disability, syndrome or special need. Parents helpline is open on Monday eveneing between 5.30p.m. and 7.30p.m. They can provide details of specific syndrome groups and local self-help groups. Produces the Contact A Family Directory of Specific conditions and rare syndromes, which lists support groups, gives information about conditions and lists useful organisations including genetics clinics. Produces a journal ‘Share an Idea’ three times a year. Also at the above address is rare Disorders Alliance – UK, which seeks to raise the profile and improve services for people with a child who has a rare disorder.

Organisation

Disabled Parents Network

Address

81 Melton Road
West Bridgeford
Nottingham
NG2 6EN

Telephone

0870 241 0450

Web Site

www.disabledparentsnetwork.org.uk

E-mail

information@disabledparentsnetwork.org.uk

Information

Network of disabled parents offering mutual support and advice. Also offer services such as an equipment helpline for advice on specialist equipment, a quarterly newsletter and training of professionals. Campaign for better services and support for disabled people in pregnancy and parenthood.

Organisation

Family Fund

Address

P.O. Box 50
York
YO1 9ZX

Contact Name

Elaine Pilmoor

Telephone

0845 1304542

Fax

01904 652625

Web Site

www.family.org.uk

Information

The Family Fund is the largest independent grant-giving organisation, helping families in the UK caring for a severely disabled child/children living at home under 15 years of age. The fund supports families through the provision of grants that relate to the need of their disabled child or young person – providing the family meets the Fund’s grant making criteria.

The fund works with an annual fixed budget and there is no entitlement to help from the fund. Grants are discretionary and subject to funds being available. The Family Fund cannot assist where there is responsibility on a statutory agency to help with the requested item.

Organisation

Fragile X Society

Address

Head Office and National Contact
Rood End House
6 Stortford Road
Great Dunmow
Essex
CM6 1DA

Contact Name

Amanda Cherry

Telephone

01371 875 100

Web Site

www.fragilex.org.uk

E-mail

Info@fragilex.org.uk

Information

The aims of The Fragile X Society are to provide support and comprehensive information to families whose children and adult relatives have fragile X syndrome, to raise awareness of fragile X and to encourage research. There is a link network of family contacts, national helplines for statementing, benefits and family support for epilepsy. Information booklets, leaflets, publication list, video and a thrice-yearly newsletter. There are also national family conferences four times a year. Family membership (UK) is free. Welcomes Associate membership from interested professionals.

Organisation

Kiloran Trust, The

Address

157 Blythe Road
London
W14 0HL

Contact Name

Sue Riley

Telephone

020 76027404

E-mail

kiltrust@aol.com

Information

The Kiloran Trust, a registered charity was established to provide residential supportive breaks for Carers. Its offers full-time Carers 5 night breaks in their West London House.

Organisation

National Association of Widows

Contact Name

Helen Downs

Telephone

024 7663 4848

Information

Offers advice and information to all widows, their families and friends. The service is free and confidential. Branches offer a network of social support and contact list.

Membership includes a contact list, newsletters, information on events, befriending service, merchandise list, holiday programme and more

Organisation

National Society for the Prevention of
Cruelty to Children (NSPCC)

Address

Weston House
42 Curtain Road
London
EC2A 3NH

Telephone

020 7825 2500
0808 800 5000 Helpline

Text phone

0800 056 0566

Fax

020 7825 2525

Web Site

www.nspcc.org.uk

Information

The NSPCC Child Protection Helpline is open 24 hours a day, 7 days a week to provide advice and support to anyone concerned about a child’s welfare.

Organisation

Nene Valley Fibromyalgia Support Group

Address

c/o 2 Isham Close
Kingsthorpe
Northampton
NN2

Contact Name

Heather Butterick

Telephone

01604 460630

Fax

01604 460630

E-mail

fms.nene@ntlworld.com

Information

Our support group strives to offer a positive approach, offers information for those diagnosed with Fibromyalgia Syndrome and support for sufferers, their Carers and families as well as those undiagnosed. We are involved in raising awareness of Fibromyalgia both locally and nationally. Group activities involve a bi-monthly general meeting (normally the second Tuesday at the Obelisk Sports & Social Club, off Obelisk Rise in Kingsthorpe between 2p.m. and 4p.m.) and occasional Saturday meeting at a members home.

There is a dedicated Group Helpline, a group newsletter is circulated to members the month in between general meetings to advise of group activities, and we also arrange suitable social outings.

Organisation

Princess Royal Trust for Carers

Address

142 Minories
London
EC3N 1LB

Telephone

020 7480 7788

Fax

020 7481 4729

Web Site

www.carers.org
www.youngcarers.net

E-mail

info@carers.org

Information

The Princess Royal Trust for Carers provides information, support and practical help to carers. It has 133 Carers Centres throughout the UK offering advice on a wide range of practical, financial and emotional issues including respite (short-term) care and benefits. Centres offer life skills training often needed by carers, such as lifting, handling and administering medicine as well as first aid. They provide an opportunity to talk about the stresses of caring. Advice and information on all aspects of being a carer is also available on the website.

Enquiries should be directed initially to:

Northampton Carers Centre on 01604 232500 or

Organisation

Relatives & Residents Association

Address

24 The Ivories
6-18 Northampton Street
London
N1 2HY

Contact Name

Alice Bellamy

Telephone

020 7359 8148
020 7359 8136 Advice Line

Fax

020 7226 6603

E-mail

www.relres.org

Information

The Relatives & Residents Association is a charitable organisation for residents in care homes and long stay hospitals and their relatives and friends. They offer support and information on choosing a home, paying fees, concerns about care and on how families and Carers can stay involved in the care of their relative.